In a remarkable journey of resilience and adaptation, an individual has navigated the challenges of living with vasculitis, a rare autoimmune condition that ultimately led to the loss of their nose. The story began in 2012 when a seemingly innocuous incident involving their dog, Cece, triggered a series of events that would alter their life. During a routine walk, Cece accidentally knocked the person's nose, setting off a chain reaction that would lead to a medical mystery unraveling two years later.
In 2014, after enduring years of uncertainty and concern, the individual received a diagnosis of vasculitis. This condition is known for its destructive impact on blood vessels, which can have severe consequences for those affected. In this case, it caused the dormant issue within the person's nose to become active, eventually leading to its collapse. By 2017, the individual's face had become flat, marking a significant milestone in their journey.
The situation took a positive turn when the individual was placed under the care of a dedicated team at Queen Elizabeth Hospital in Birmingham. The medical professionals embarked on a mission to restore the person's sense of normalcy and confidence. Their innovative approach involved the construction of a prosthetic nose, designed to blend seamlessly with the person's ever-changing skin tone, which varies with the seasons.
Today, the individual has an impressive collection of prosthetic noses, with seven different options to choose from. Each morning begins with a meticulous routine: they clip on their chosen nose, which stays securely in place thanks to three magnets screwed into the space where their natural nose once existed. The process also includes rinsing out this space daily, ensuring that it remains clean and ready for the prosthetic attachment.
Beyond the physical adjustments, the individual has channeled their experience into advocacy and education. Through Vasculitis UK, they have been actively giving talks to doctors and medical professionals to raise awareness about vasculitis. Their efforts aim to shed light on this often-overlooked condition and promote understanding and support for those who face similar challenges.
Amidst these trials, the individual's personal life has remained a testament to strength and partnership. Their marriage has proven incredibly resilient throughout this journey. The unwavering support from their spouse has been a cornerstone of their emotional well-being, providing comfort and encouragement during times of adversity.